Nigeria has several institutions, NGOs, and government bodies dedicated to improving awareness, diagnosis, and care for sickle cell disease. These organizations play an essential role in reducing stigma, providing treatment support, and empowering families affected by SCD.
One of the most prominent bodies is the Sickle Cell Foundation Nigeria (SCFN). The foundation manages several programs, including genotype testing, counseling, crisis management, and the National Sickle Cell Centre in Lagos. It also runs the SCFN Registry, a national system designed to track patient data, improve research, and support policy development.
The Sickle Cell Support Society of Nigeria (SCSSN) is another key network made up of medical professionals, researchers, and advocates. The society focuses on standardizing treatment practices, supporting caregivers, and increasing public awareness. They frequently organize conferences, workshops, and community outreaches to educate Nigerians on genotype compatibility and crisis prevention.
The Nigerian government has also developed important resources, such as the National Guideline for the Control and Management of Sickle Cell Disease, which outlines recommended treatment strategies, newborn screening approaches, and community education measures. This document serves as a national roadmap for reducing sickle cell–related deaths.
Additionally, academic researchers in Nigeria regularly publish studies on SCD prevalence, mortality, and clinical complications, helping shape evidence-based policy. Platforms like PubMed, the Pan African Medical Journal, and Nigerian medical journals provide high-quality research for professionals and caregivers.
Together, these resources form a strong foundation for improving sickle cell care in Nigeria. However, much more investment is still needed in public education, early screening programs, community support, and affordable treatment options.