Effective Date: November 18, 2025

Your privacy is sacred to us. Sacred Life Sickle Cell Foundation (SLSCF) is committed to protecting the privacy and confidentiality of your personal information, especially sensitive health data, as we work together to support the sickle cell community. This policy explains what information we collect, how we use it, and your rights concerning that information.

1. No Medical Advice Disclaimer

IMPORTANT: The information, content, and programs offered by SLSCF through this website, communication channels, or in-person activities are for general informational and educational purposes only. We are not a healthcare provider, and nothing we provide constitutes medical advice, diagnosis, or treatment.

• Always seek the advice of a qualified physician or other healthcare provider with any questions you may have regarding a medical condition.
• Never disregard professional medical advice or delay in seeking it because of something youhave read or learned from SLSCF.

 

2. Information We Collect

We collect information directly from you when you interact with our programs, website, or team, and automatically as you use our services.

A. Personal Identifiable Information (PII)
This is information that can directly identify you.
Contact Information
Name, email address, phone number, physical address (collected via donation forms, registration, or contact forms).
Financial Information
Payment card details or bank information (collected only when donating). We do not store this information; it is processed securely by third-party payment gateways.
Program & Sensitive Health Data (Sensitive PII)
Information related to your Sickle Cell Disorder (SCD) status, treatment needs, family history, and participation in support programs. This is collected only with your explicit consent.

B. Non-Personal Information (Non-PII)
This information relates to your device and website usage and does not directly identify you.

• Technical Information: Device type, operating system, browser type, IP address.
• Usage Data: Pages viewed, time spent on the site, links clicked, and the referring website.

 

3. How We Use Your Information

We use the information we collect to fulfill our mission and keep you connected to the SLSCF community.

• To Run Our Programs: We use your information, including Sensitive PII (with your consent), to verify eligibility for programs, deliver patient support services, organize blood drives, and coordinate community screenings.
• To Process Donations: To accept and process your one-time or recurring financial contributions and issue official tax receipts.
• To Communicate with You: To send you updates, newsletters, campaign alerts, volunteer opportunities, and respond to your questions or feedback.
• For Impact Reporting and Research: We use anonymized and aggregated data to measure the success of our campaigns, report to grantors and partners, and support research initiatives. We never share your identifiable health information without your specific consent.
• To Maintain and Improve the Website: We analyze usage data to fix technical issues, improve navigation, and ensure the website works well on all devices.

 

4. How We Share Your Information

We do not sell your Personal Identifiable Information (PII). We share information only in specific, necessary circumstances:

• Service Providers: We share necessary information with trusted third parties who help us operate, such as payment processors (for donations), email service providers (for newsletters), and web hosting companies. These providers are obligated to protect your information.
• Legal Compliance: We may disclose your information if required by law, subpoena, or if we believe such action is necessary to protect the rights, property, or safety of SLSCF, our community, or others.
• With Your Explicit Consent: For example, sharing a personal “Warrior Story” or testimonial requires your clear written permission.

 

5. Your Rights and Choices

You have control over your data and how we communicate with you:

• Access and Correction: You can request access to the PII we hold about you and ask us to correct any inaccuracies.
• Opt-Out of Communications: You can unsubscribe from our newsletters and marketing emails at any time by clicking the “unsubscribe” link at the bottom of the email.
• Right to Erasure (Right to be Forgotten): You can request that we delete your PII. We will comply, subject to legal requirements to retain certain records (e.g., financial donation history).

 

6. Contact Us

If you have any questions about this Privacy Policy or our data practices, please contact us: Sacred Life Sickle Cell Foundation (SLSCF)
Email: info@sacredlifescfoundation.org